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August 30, 2000

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An open letter of thanks

The following letter was received from Robert Krepelan, an EMT for Lyon County EMS and dispatcher/deputy jailer for Livingston County, whose six-year-old daughter has inoperable brain tumors. Lyon County EMS has established a trust fund to assist his daughter. See related article.

I would like to take this opportunity to thank everyone for their prayers and concern for my family and my daughter. 

Tiffanys tumor is called Brain Stem Glioma. There are approximately 150-200 cases of this tumor found each year in children. This particular tumor is located on the center lower portion of the inside of the pons, which makes it inoperable. Average long term survival ranges between 0-20%, depending on the location. Tiffany's rate is approximately 4%. Survival time ranges from 3 - 15 months -- some may be longer or shorter. 

We are currently undertaking in a research program through Chicago Children's Hospital, under the direction of Dr. Stewart Goldman. It consists of radiation therapy, chemotherapy, and a drug called Thalidomide. He is hoping to extend survival statistics. 

The only symptoms Tiffany currently has are: crossed eyes, loss of muscle tone and mobility on her right upper and lower side, and stroke-like "draw effects" to the left side of her face.

My wife and I are currently trying to find ways to make this type of cancer more well known to people, to help people like Dr. Goldman in his research.

Again, we cannot begin to express our thanks for everyone's prayers and help. As a member of Ledbetter Fire, Lyon County EMS, and the Livingston County Jail, I have assisted many others, but I never thought it would come around to my family.

AGAIN...THANK-YOU TO ALL

The Krepelan Family

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